I had the chance to attend the 2015 Global Genes RARE Summit and was inspired by the passion that the attendees at the summit shared. The rare disease community is clearly one in which patients, researchers, and advocates look out for and help each other. Unfortunately, this support is needed in part because they lack support outside their communities.… Continue reading WeHealth for Rare Disorders
We have launched the testing version of the WeHealth.co website, a platform that will help connect patients with groups, communities, and therapies. WeHealth was created to bridge the gap between the isolated undiagnosed individuals living with a disease and the communities, advocates, and companies working to improving the lives of those individuals. We recognize that there are… Continue reading The WeHealth.co Website is up!